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Sunday, February 16, 2014
Thursday, February 6, 2014
Update
It has been 12 days since surgery to remove the other ovary and tube and the night we started chemotherapy treatments. Evie is doing incredibly well. She is up playing, even when I think she should quiet it down...reading, coloring and playing her tablet (given by the local dentist and staff, Riverside Dental). At first look you would not know she was battling cancer. Her hair is thinning and her counts are down. Her red blood cells and platelets are at the low end of normal. Her white blood cell are low and that means that she can get sick easier. So needless to say a lot of Clorox wiping!
I would like to thank you all for being Evie's Angels. I've thought often of how she has been our angel also. She has inspired us, strengthened us, brought together family, friends and communities. I know prayers are heard and answered. It has been said that our prayers are usually answered by someone else coming to our aid.
I know that so many have come to James and I's families aid in a time of great need. But just maybe Evie's story has come to your aid in a time of need....I pray it is so.
She is my strength, my love, my daughter, my tears and my hope. Clancy, Anna, Holt, Kristi and Gary are my angels, my answers, my love and my life also. James is the love of my life and my best friend. I love my family with what the scriptures describe as Charity. Charity is the PURE love of Christ. And Charity never faileth.
I would like to thank you all for being Evie's Angels. I've thought often of how she has been our angel also. She has inspired us, strengthened us, brought together family, friends and communities. I know prayers are heard and answered. It has been said that our prayers are usually answered by someone else coming to our aid.
I know that so many have come to James and I's families aid in a time of great need. But just maybe Evie's story has come to your aid in a time of need....I pray it is so.
She is my strength, my love, my daughter, my tears and my hope. Clancy, Anna, Holt, Kristi and Gary are my angels, my answers, my love and my life also. James is the love of my life and my best friend. I love my family with what the scriptures describe as Charity. Charity is the PURE love of Christ. And Charity never faileth.
Taken the day before finding the tumor*
Sunday, February 2, 2014
Saturday, February 1, 2014
Update!
Last week on January 23, we were in Salt Lake for some tests for Evie prior to surgery and chemo. Friday was very busy. We met with our endocrinologist at 8:30 in the morning. He is great, very understanding, knowledgeable and excellent in explaining so we could understand.
Next we were at surgery registration at 10 and then went to the oncology clinic to meet with our Dr's before the surgery. I have to admit that reality hits pretty hard when you walk through those doors. The Dr's were very good to make sure we understood what the plan was as well as answer any questions....and there were a lot!
Surgery time was up. It was about 1pm and we met with our surgeon. He took us to a room and sat and explained everything again very thoroughly. It was funny, he was in a suit and when the discussion was over he said "Well, I'll go get my work clothes on then."
When they take you and your child to the doors where you have to say "see you soon, love you" and Dad gives his little girl a kiss on the forehead is one of the hardest parts. The surgery took a couple of hours and it went really well. She recovered from this one much faster.
We went from recovery straight to the oncology, hematology, bone marrow unit. She was resting peacefully and the nurses were awesome to get her all settled with great ease and quietly.
At midnight we were having to make sure she was hydrated enough before we could start her treatment. Finally at 2am we were able to start the first medicine. James had went to go get some sleep at the Ronald McDonald house. I sat in the chair beside her bed and rocked. The nurse quietly said "Ok, we just started the first medicine." I started to cry. She told me it's ok to cry, it is emotional. Then she sat on the couch beside me and cried a bit with me.
The treatment took us through the night and I stayed awake as Evie slept. I had so much love for her fill my soul sleep was impossible.
We did these treatments for three nights and then did hydration for 24 more hrs. She was able to have her nausea controlled by medicine. She even ate a good meal each day. When we were able to come home on Tuesday her spirits were up even though she was very tired.
Needless to say it was a heavy weekend and through much love, faith, people, support, prayers and so much more it eased the load.
Thank you to you all. We have so many to be grateful to for so many different things. I wish there were words that could explain how we feel, but until then please accept our gratitude.
Next we were at surgery registration at 10 and then went to the oncology clinic to meet with our Dr's before the surgery. I have to admit that reality hits pretty hard when you walk through those doors. The Dr's were very good to make sure we understood what the plan was as well as answer any questions....and there were a lot!
Surgery time was up. It was about 1pm and we met with our surgeon. He took us to a room and sat and explained everything again very thoroughly. It was funny, he was in a suit and when the discussion was over he said "Well, I'll go get my work clothes on then."
When they take you and your child to the doors where you have to say "see you soon, love you" and Dad gives his little girl a kiss on the forehead is one of the hardest parts. The surgery took a couple of hours and it went really well. She recovered from this one much faster.
We went from recovery straight to the oncology, hematology, bone marrow unit. She was resting peacefully and the nurses were awesome to get her all settled with great ease and quietly.
At midnight we were having to make sure she was hydrated enough before we could start her treatment. Finally at 2am we were able to start the first medicine. James had went to go get some sleep at the Ronald McDonald house. I sat in the chair beside her bed and rocked. The nurse quietly said "Ok, we just started the first medicine." I started to cry. She told me it's ok to cry, it is emotional. Then she sat on the couch beside me and cried a bit with me.
The treatment took us through the night and I stayed awake as Evie slept. I had so much love for her fill my soul sleep was impossible.
We did these treatments for three nights and then did hydration for 24 more hrs. She was able to have her nausea controlled by medicine. She even ate a good meal each day. When we were able to come home on Tuesday her spirits were up even though she was very tired.
Needless to say it was a heavy weekend and through much love, faith, people, support, prayers and so much more it eased the load.
Thank you to you all. We have so many to be grateful to for so many different things. I wish there were words that could explain how we feel, but until then please accept our gratitude.
Saturday, January 25, 2014
January 24
Today was the day we had all prepared for as much as we could. We visited our endocrinologist early in the morning. We then registered for surgery which is her second one. The first was last December. After being highly educated by our oncology Dr's and our surgeon it was off to surgery. Anyone know the feeling of kissing you child before they go through the double doors without you? The surgery went as expected. Meaning good and found no other concerns. We were taken to the oncology unit for recovery.
At 2:15am Evie's received her first medicine for the chemotherapy treatments. The nurse said "she just started chemo," I teared up, she said "its emotional isn't it, it's ok to cry." I simply said oh I've cried a thousand tears and more. When she walked out I lost it.
There laid my little girl, with no ovaries or tubes, and was sound asleep receiving chemotherapy. We do not know what tomorrow will bring. Live each day with no regrets. Kiss and hug your spouse and kids. Be nice to all you meet. Enjoy the tiny moments. Cry the tears and dry them, lift your head to heaven and say thanks for another day.
At 2:15am Evie's received her first medicine for the chemotherapy treatments. The nurse said "she just started chemo," I teared up, she said "its emotional isn't it, it's ok to cry." I simply said oh I've cried a thousand tears and more. When she walked out I lost it.
There laid my little girl, with no ovaries or tubes, and was sound asleep receiving chemotherapy. We do not know what tomorrow will bring. Live each day with no regrets. Kiss and hug your spouse and kids. Be nice to all you meet. Enjoy the tiny moments. Cry the tears and dry them, lift your head to heaven and say thanks for another day.
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