Saturday, February 1, 2014

Update!

Last week on January 23, we were in Salt Lake for some tests for Evie prior to surgery and chemo.  Friday was very busy.  We met with our endocrinologist at 8:30 in the morning.  He is great, very understanding, knowledgeable and excellent in explaining so we could understand.
Next we were at surgery registration at 10 and then went to the oncology clinic to meet with our Dr's before the surgery.  I have to admit that reality hits pretty hard when you walk through those doors.  The Dr's were very good to make sure we understood what the plan was as well as answer any questions....and there were a lot!
Surgery time was up.  It was about 1pm and we met with our surgeon.  He took us to a room and sat and explained everything again very thoroughly.  It was funny, he was in a suit and when the discussion was over he said "Well, I'll go get my work clothes on then." 
When they take you and your child to the doors where you have to say "see you soon, love you" and Dad gives his little girl a kiss on the forehead is one of the hardest parts.  The surgery took a couple of hours and it went really well.  She recovered from this one much faster. 
We went from recovery straight to the oncology, hematology, bone marrow unit.  She was resting peacefully and the nurses were awesome to get her all settled with great ease and quietly. 
At midnight we were having to make sure she was hydrated enough before we could start her treatment.  Finally at 2am we were able to start the first medicine.  James had went to go get some sleep at the Ronald McDonald house.  I sat in the chair beside her bed and rocked.  The nurse quietly said "Ok, we just started the first medicine."  I started to cry.  She told me it's ok to cry, it is emotional.  Then she sat on the couch beside me and cried a bit with me. 
The treatment took us through the night and I stayed awake as Evie slept.  I had so much love for her fill my soul sleep was impossible.
We did these treatments for three nights and then did hydration for 24 more hrs.  She was able to have her nausea controlled by medicine.  She even ate a good meal each day.  When we were able to come home on Tuesday her spirits were up even though she was very tired. 
Needless to say it was a heavy weekend and through much love, faith, people, support, prayers and so much more it eased the load.
Thank you to you all.  We have so many to be grateful to for so many different things.  I wish there were words that could explain how we feel, but until then please accept our gratitude.

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